The mind is perfect. Guillain Barre doesn’t touch the mind. It traps the active mind in a broken body. Imagine being buried alive in a coffin and that can’t be far off the mark.  With the ventilator tube in the mouth speech is impossible. Movement is impossible. communication is impossible.

So we improvise. A childrens alphabet board. I point at a row, is the first letter in there? No. Second Row, two blinks of the eyes. Yes. This letter? One blink. No. this letter? Yes. H. Sure? Yes. H. So the next letter must be a vowel. A,E,I, O blink blink. O. OK, getting there. H.O.L. “hold”…  Hold my Hands.  We’d forgotten the importance of the physical attention and love.

Advertisements