It is now three years since I came out of hospital after a six month stay to a new house and on the way to getting better.
I was using a walking frame, could hardly feed myself or wash and dress. It was great being home albeit to a new strange environment and quite soon I was able to walk unaided in the house. However I have not made a full recovery and still suffer fron the following affects:
My feet still feel uncomfortable and quite often my legs don’t work that well. I need a wheelchair for any distance outside and don’t feel safe anywhere on my own.
My hands are not as strong as before meaning that writing and typing are difficult and opening tins and squeezing bottles a non starter. I get quite a lot of cramp all over my body.
The most affected part is around my mouth and jaw which affects my ability to eat. I can now only cope with soft or very crisp food although chocolate is still my favorite!
Though my speech (I am told) is normal, I do not find talking in a natural fashion easy, as I have to annunciate my words very carefully. Luckily or unluckily that does not stop me talking!
I get tired very quickly and have to sit down after not very much activity or just standing. However I really can’t complain as life is pretty normal and though I am excused most duties in the home, I do do a bit of cooking and love making greeting cards. I can go out and meet friends, take caravan holidays and go cruising.
I am lucky to have a wonderful husband who is always ready to listen to my memories of hospital and the hallucinations and is sometimes able to say that I did not imagine certain things.
I hope my blogs have been of help and have shown that there is hope even though the whole experience of GBS is so awful and indeed frightening at the time. I find the memories are never far from my thoughts especially on sleepless nights!
A happy Christmas and healthy New Year to all my readers.